News from the NICU

NICU time seems to move slower than most, but the news seems to flow faster. Faster, sadly, than seems reasonable; the minute we compile any real bulletin, the status changes.

As of now Bear has improved markedly. She splays herself out widely at all opportunities and can be caught stealing glances at the room during most care times. She is primarily sleeping and growing (up ounces since birth). Her medical assignment of late has been of our new three favorite words: โ€œRest and grow.โ€

Sadly, Button has had the opposite experience. Perhaps out of envy, or just mere unluckiness, Button has had to have a PICC line put in (a longer-term version of an IV) just like her sister. This has been done to more reliably deliver the antibiotics she will be receiving for the next 21 days to combat a Staph infection she contracted sometime last week. As of now the doctors and nurses donโ€™t believe anything has spread to her heart, bones, or spinal fluid (meningitis) but cultures are being routinely run just to be sure. The consistent testing has taxed her blood supply, and we are awaiting news if she is to receive a blood transfusion in the next few days. Through it all, she is a confident fighter, awing her medical team by maintaining strong vitals and her ever-present feud with all things poking and prodding. We couldnโ€™t be more grateful for every waving fist.

Bear praying for her sister

We would also like to offer our fiercest wishes for comfort to beloved members of our family, the Schians, who just lost their son and brother, Matthew. We love you and weโ€™re so sorry.

8 responses to “News from the NICU”

  1. Sending lots of prayers and hugs for your two little fighters and for their loving family! ๐Ÿ™๐Ÿฝ๐Ÿ’–

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  2. msbannergmailcom Avatar
    msbannergmailcom

    you are all surrounded by love, just as bear is literally bundled up in all those hearts. sending warmth and strength to you, and to matthewโ€™s loved ones โค๏ธโ€๐Ÿฉน

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  3. Thanks for the update.
    Bear and Botton are fighters, what a big thing for two such small beautys.
    Praying, just like Bear for Botton.
    Sending all of our love to you, Meghan,Lucy,Botton, and Bear.
    You are in our thoughts constantly.
    So very sorry to hear about your friends son.

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  4. We continue to send prayers for all of you! My deepest sympathies to the loss of Matthew. Keep fighting our little warriors !!

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  5. Heather Squires Avatar
    Heather Squires

    Praying with Bear! ๐Ÿ™โค

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  6. Good and not as good news..but thanks for the update. So sorry for your friends.
    Hugs & warm wishes ๐Ÿ’•

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  7. Thank you for the update..
    Good to hear that Bear is coming along.. I am sure her sister will do the same . Twins have a sense about each other and they will feed energy between themselves.. As a father of twins I have seen it ..
    My condolences to your family for their loss and I will join Bear in prayers for her sister and your family..

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  8. ๐Ÿ™๐Ÿ’ž prayers are with you and the B B B s๐Ÿ€๐Ÿ˜

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